UNCLE JIMMY wrote:While I'm thinking, uhh! Anybody hear from Crybaby, or Imelda?? Haven't heard from them in days / weeks ..!!!
Hi Jimmy! Just came in to see how much I could read and saw your query. Thanks for thinking of me! I've stopped in quickly about once a month or so but we have had a lot going on and sometimes I'm just lazy, too. Brian has been ill lately and is taking new cancer meds which have been bothering his stomach a bit. Once they found the lung cancer, they switched him to another medicine for his prostate cancer. The old meds came in the mail from a specialty pharmacy and though he canceled right away, the idiots kept sending it THREE more times until we screamed Uncle loud enough. It's not cheap either ($2300/month copay alone -- I'm thinking of Lore's sister's cancer treatment right now for which she pays only for parking)!
The problem is most pharmacies refuse to take back anything. My own specialty pharmacy would sometimes send me the wrong supplies, some tubing to run between my I.V. in my arm to the computer pump that controls the amount of meds I get, that was the wrong size. When I called them, the woman said they probably sent it because they were out of the right size. What sense does that make if I can't use it (too thin and the same amount of meds wouldn't go through to my heart; keep in mind that my meds are life sustaining and it ticks you off). I told the lady not only did THAT not make sense but why on earth would they send me a dozen packs of the stuff that they knew they wouldn't take back?!!
But I told Brian that I had a funny feeling that his team of doctors at Tulane Cancer Center would indeed be glad to get three months of that costly medicine and to call them to see if they would take it. They were over the moon with joy that he offered it to them! Not only is it too pricey for many but having three months worth right there means the doc can put someone on the medication IMMEDIATELY, which is pretty important when you're fighting to stay alive. We were thrilled, too, about it and felt really good that it happened. Plus one of his doctors sought him out the last time he was there to thank him for bringing in three months worth of that medication. He's so lucky as they're so nice over there and it's obvious they love Brian, too.
With him not feeling well lately means I've been doing more than I normally do around here 'cause Brian does A LOT around the house and I've been tired. My PH makes you tired sometimes for no reason as well, even if you've not done much of anything. So the combo sometimes turns me into a sloth.
But I did think of you guys yesterday which I will get to before leaving the site tonight. Thanks for thinking of me. I know everyone has to be missing Imelda and her scrumptious looking food, too.