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A HUGE WELCOME

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76 Re: A HUGE WELCOME on Fri Nov 29, 2013 10:52 pm

Niagara Visitor



Thanks. I took possession Nov. 26. I have taken a few things there. cheese, crackers, some drinks, yesterday two lawn chairs and a small table so that if someone does come, we have a place to sit. there is a breakfast counter with two bar stools so there's actually room for 4 people. I have to decide what furniture I will take, but since I have not sold the farm, I have lots of time. I am so fortunate that I can do this in this way. Had an offer on the farm this week, but he's got no $$$$ and thinks that I am desperate because I have purchased the condo.

One of the items of furniture that will be available for sale, or even just to be had for free, is a wagon wheel coffee table that hubby's cousin made about 45 years ago. I just would like to have something new for me. When I mentioned it on the old forum someone said that he would love to have it. Is that person here? I would love to have it go somewhere where it will be loved. Shipping could add up, though.

77 Re: A HUGE WELCOME on Fri Nov 29, 2013 11:07 pm

bethk

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Admin
Well, I am happy for you to be able to stay in the condo should the weather turn nasty. At least you'll be able to be close to people and not way out on the farm by yourself. And you can bring what you want a little at a time.

I can't tell you how nice it is to have 99% of our "stuff" finally here in the villa. It's full but there are a few small items that will still be moved in. And in about 3 weeks we will have owned this place for a year....hard to believe!

78 Re: A HUGE WELCOME on Fri Nov 29, 2013 11:19 pm

Niagara Visitor


My sister has a roll away bed that I will take there in the next few days. She doesn't need it, and is happy that it will be out of her way. One day at a time, Lord, that's all I keep saying.

79 Hello everyone! on Sat May 23, 2015 2:14 pm

Crybaby

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I hope some of you realized I haven't been here in a while!  

I'll be looking around and talking to you today and hopefully, for a while.

--Michelle

80 Re: A HUGE WELCOME on Sat May 23, 2015 2:52 pm

bethk

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Admin
I knew you'd be back when you were feeling up to it.

Hope you'll get us all caught up before I leave on Monday for a 3-week 'don't know if I'll have access to a computer....' trip to my daughter's......

Heck, everyone will probably cheer just to know I'm gone for a while!

81 Re: A HUGE WELCOME on Sat May 23, 2015 3:06 pm

Barbara101

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bethk wrote:I knew you'd be back when you were feeling up to it.

Hope you'll get us all caught up before I leave on Monday for a 3-week 'don't know if I'll have access to a computer....' trip to my daughter's......

Heck, everyone will probably cheer just to know I'm gone for a while!



Not true..You will be very missed.Get a tablet or borrow a laptop.. Sad

82 Re: A HUGE WELCOME on Sat May 23, 2015 3:08 pm

Barbara101

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Good to see you Michelle

83 Re: A HUGE WELCOME on Sat May 23, 2015 3:20 pm

UNCLE JIMMY

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Crybaby wrote:I hope some of you realized I haven't been here in a while!  

I'll be looking around and talking to you today and hopefully, for a while.

--Michelle

Yay!... Crybaby came back!
Good to hear from you! .... We did miss you.
cheers

84 Re: A HUGE WELCOME on Sat May 23, 2015 3:26 pm

Crybaby

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bethk wrote:I knew you'd be back when you were feeling up to it.

Hope you'll get us all caught up before I leave on Monday for a 3-week 'don't know if I'll have access to a computer....' trip to my daughter's......

Heck, everyone will probably cheer just to know I'm gone for a while!

I started having backache in October and assumed it was my pulmonary hypertension or the IV drug I took for it. Come late January, early February, the pain was immobilizing, like knives in my lower back. Sometimes I could not move for 3 to 4 hours due to debilitating pain. Finally saw an orthopedic surgeon in early April who explained, after x-rays, that I have 5 (and growing!) stress fractures in my vertebrae, due to weakening of my bones due to high steroid use for 8 months when I had sarcoid in my lungs. Said pain should dissipate within 6 to 8 weeks but I must keep fracturing more vertebrae -- it's not my fault as it just happens on its own. Trust me, I hardly do a thing anymore except take pain pills. Brian does absolutely everything and does it well. I have housecleaners coming in every two weeks (which I should have had before).

I told surgeon yesterday I was ready for a "minimally invasive" procedure (kyphoplasty) where they knock me out, feed tubing up my back guided by video and put a balloon into each of the most recent fractures (the most painful which he can see on an MRI) and make some space. Then they fill the space with medical cement and hopefully, I walk out of there in an hour or two. With no pain outside of some at the insertion site. Pain may take a day or two to fully leave and it won't stop new fractures. But I can no longer stand the pain. It's so intense that I end up feeling sorry for myself and crying several times a day. It's really difficult when one is new (like one I'm sure happened yesterday), as the cutting, knifing, pulling pain is much worse. I can't get comfortable in bed, sitting up on the sofa or sitting or standing anywhere. I can walk short distances but can no longer straighten up. On a doctor's "measure stick," I always measured 5 foot 7-3/4 inches and now I measure 5 foot 6 inches. The procedure should restore some of my height and allow me to stand up straight (straighter, at least).

The board certified surgeon has done hundreds of these and even one on a person with PH like me. My IV pump will have to remain attached and running during the surgery. I have to add cords between my IV cord and my pump in order to have an MRI done. Only hope MRI place doesn't flip out, as not many people (even pulmonologists) are familiar with PH and its current treatment.

Needed a new computer and even though I hate laptops and love desktops, I got a laptop due to our very steep stairs so I don't have to climb the stairs every time I want to use the computer. I sent Barbara an email this A.M. asking for a link to this site as I'm too disabled today to go up the stairs until I plan to stay up there. Thanks, Barb.

Also, I don't type as fast on this damn thing and it's really frustrating...

Glad to be back if only back occasionally!

85 Re: A HUGE WELCOME on Sat May 23, 2015 3:27 pm

Crybaby

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Barbara101 wrote:Good to see you Michelle


Thanks, B!

86 Re: A HUGE WELCOME on Sat May 23, 2015 3:30 pm

Crybaby

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UNCLE JIMMY wrote:
Crybaby wrote:I hope some of you realized I haven't been here in a while!  

I'll be looking around and talking to you today and hopefully, for a while.

--Michelle

Yay!... Crybaby came back!
Good to hear from you! .... We did miss you.
cheers


Thanks, Jimmy! I thought of you when I was typing that long message, and wondered if you'd go get a drink before reading it (big grin)!!

Missed lots of you and you were at the top of the list!

87 Re: A HUGE WELCOME on Sat May 23, 2015 4:24 pm

bethk

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Admin
You've been in my prayers since last we chatted.....so sorry for all the problems and pain. Hopefully your medical staffers will be able to give you some relief.

88 Re: A HUGE WELCOME on Sat May 23, 2015 4:31 pm

Bugster2

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Those steroids are nasty. My MIL had to take them and fractured her vertebrae just by sitting down on her bed. Is there a bone building drug you might take?

89 Re: A HUGE WELCOME on Sat May 23, 2015 4:40 pm

UNCLE JIMMY

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Crybaby wrote:
UNCLE JIMMY wrote:
Crybaby wrote:I hope some of you realized I haven't been here in a while!  

I'll be looking around and talking to you today and hopefully, for a while.

--Michelle

Yay!... Crybaby came back!
Good to hear from you! .... We did miss you.
cheers
 

Thanks, Jimmy!  I thought of you when I was typing that long message, and wondered if you'd go get a drink before reading it (big grin)!!

Missed lots of you and you were at the top of the list!

Oh! Michelle, I love stories. It was disheartening reading the explanation of your problems health wise, but I did enjoy the reading and the information.
You take care and get that procedure done. Tina and I will be praying for the Lord to guide the Doctors and you through the ordeal.
Look at it this way! You have to imagine it can Only Make Things Better.
Think positive. God Bless Brian for all he does.

It's like me! .... I'm playing nurse / doctor with Tina today, and who knows how long. She has a flare-up of Diverticulitis.

90 Re: A HUGE WELCOME on Sat May 23, 2015 5:03 pm

Niagara Visitor


Welcome back from me also! You poor thing with all those fractures. I had a compression fracture in my spine about 20 years ago, and remember the pain very well. I fell in my kitchen to cause it. Thankfully only one.

Take care of yourself. Do you have one of those magical electric recliners? I had one, and it was so helpful in raising and lowering me from sitting to standing, and even sometime nights sleeping in it.

91 Re: A HUGE WELCOME on Sun May 24, 2015 8:10 pm

Crybaby

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Bugster2 wrote:Those steroids are nasty. My MIL had to take them and fractured her vertebrae just by sitting down on her bed. Is there a bone building drug you might take?

My primary physician seemed to think if I have osteoporosis (which I doubt as I was a milk girl my whole life and still eat a lot of dairy) that those drugs could help me regenerate my bones. My ortho doc just smiled and said bone won't regenerate in someone my age (61).

Yep, I don't have to do a thing to fracture my vertebrae, which he said is normal for those who took high doses of steroids. I'm sure I fractured one on Friday a.m.; the knifing pain -- even worse than what I now experience daily -- came later on in the afternoon. I'd felt a little what I call "electric shock" in my lower back Friday a.m. when I stooped down to wipe something off the bedroom carpet that I'd dropped. Today, Sunday, that type of pain is waning and I'm getting back to my usual everyday excruciating pain.

Brian has been amazing. He literally does everything -- cooking, laundry, working on the garden including watering and fertilizing all the plans, grocery shopping, and waiting on me hand and foot all day (not to mention mixing my medicine every other day, hooking me up to the new cassette of meds and then weekly, cleaning and re-bandaging my IV entrance point in my arm). He starts off every day (and remember he has stenosis of the spine and prostate cancer on the base of his spine) by going downstairs, making coffee, bringing me coffee in bed along with his so we can watch the news together and then goes downstairs again to get us each another cup. I hate eating when I'm in pain but he can't resist sometime bringing some little white donuts, one or two of which I can get down with coffee! Plus my poor baby has to eat something as he takes a lot of pills each morning, including a killer pain pill.

On a good day when my pain pill (or pills some mornings) has already kicked in and is working well, I'm able to go out on the balcony off our bedroom with Brian and look at the levee and the Mississippi River. Occasional walkers, joggers, bike riders and baby stroller pushers pass, along with huge freighters and the occasional cruise ship if we're out there really early, barges, tugs and pushboats -- we see them all and many times exchange hellos and good mornings with several of those using the levee. Very relaxing though the cypress furniture we have out there is a little tough on my back. Brian brings out three old down bed pillows for me to sit on when I'm able to make it out there -- even after having to do everything for me and the household, he still thinks of things to make it easier or more pleasant for me. So even though I feel sorry for myself way too often lately, I truly am blessed.

92 Re: A HUGE WELCOME on Sun May 24, 2015 11:57 pm

UNCLE JIMMY

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Crybaby wrote:
Bugster2 wrote:Those steroids are nasty. My MIL had to take them and fractured her vertebrae just by sitting down on her bed. Is there a bone building drug you might take?

My primary physician seemed to think if I have osteoporosis (which I doubt as I was a milk girl my whole life and still eat a lot of dairy) that those drugs could help me regenerate my bones.  My ortho doc just smiled and said bone won't regenerate in someone my age (61).

Yep, I don't have to do a thing to fracture my vertebrae, which he said is normal for those who took high doses of steroids.  I'm sure I fractured one on Friday a.m.; the knifing pain -- even worse than what I now experience daily -- came later on in the afternoon.  I'd felt a little what I call "electric shock" in my lower back Friday a.m. when I stooped down to wipe something off the bedroom carpet that I'd dropped.  Today, Sunday, that type of pain is waning and I'm getting back to my usual everyday excruciating pain.  

Brian has been amazing.  He literally does everything -- cooking, laundry, working on the garden including watering and fertilizing all the plans, grocery shopping, and waiting on me hand and foot all day (not to mention mixing my medicine every other day, hooking me up to the new cassette of meds and then weekly, cleaning and re-bandaging my IV entrance point in my arm).  He starts off every day (and remember he has stenosis of the spine and prostate cancer on the base of his spine) by going downstairs, making coffee, bringing me coffee in bed along with his so we can watch the news together and then goes downstairs again to get us each another cup.  I hate eating when I'm in pain but he can't resist sometime bringing some little white donuts, one or two of which I can get down with coffee!  Plus my poor baby has to eat something as he takes a lot of pills each morning, including a killer pain pill.  

On a good day when my pain pill (or pills some mornings) has already kicked in and is working well, I'm able to go out on the balcony off our bedroom with Brian and look at the levee and the Mississippi River.  Occasional walkers, joggers, bike riders and baby stroller pushers pass, along with huge freighters and the occasional cruise ship if we're out there really early, barges, tugs and pushboats -- we see them all and many times exchange hellos and good mornings with several of those using the levee.  Very relaxing though the cypress furniture we have out there is a little tough on my back.  Brian brings out three old down bed pillows for me to sit on when I'm able to make it out there -- even after having to do everything for me and the household, he still thinks of things to make it easier or more pleasant for me.  So even though I feel sorry for myself way too often lately, I truly am blessed.  

I just finally pulled up my chair, and read this beautiful post about Brian, and How so loving he took the bull by the horns, and is so helpful to you.
God Bless him, and you. I guess, this is the part of that vow, that says,'Through sickness and Health!"..... Brian is living up to his part, if that may be the case.

Just remember, when you are healed, by the grace of God, and with keeping the faith, and with the medical technology of today, I'm sure in the not too distant future, you will make a nice breakfast for Brian, and serve Him in Bed! ..... I could see that.
As much as you enjoy the travel craft near the levy's and the relaxation and piece of mind sitting on the porch in your pillow padded chair, you remember, look just a little further, and you Will See yourself with less pain, and you Will See yourself healing. And all the while, all the love of Brian shall support you, and strengthen you even more.
You are both made for each other, and Pray that you shall serve each other, and be with each other ( literally ), for a long long time.

93 Re: A HUGE WELCOME on Mon May 25, 2015 8:01 am

bethk

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Admin
Awwww....both wonderful posts.

Ditto on what Jimmy said, Michelle. You and Brian are both fortunate to have each other. Stay strong and know we are all praying for you to have strength and courage to complete your treatment. I'm sure Brian just wants to make things as easy as possible for you....that's life love, to be sure!

And, like you said, You are blessed.

94 Re: A HUGE WELCOME on Mon May 25, 2015 11:08 am

cookingirl

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Michelle, ((hugs))) -------what a wonderful tribute to Brian...
Sounds like you guys are truly love, honor, and respect each other; in other words~true friends in marriage...((hugs))

95 Re: A HUGE WELCOME on Tue May 26, 2015 5:53 pm

Crybaby

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UNCLE JIMMY wrote:I just finally pulled up my chair, and read this beautiful post about Brian, and How so loving he took the bull by the horns, and is so helpful to you.
God Bless him, and you. I guess, this is the part of that vow, that says,'Through sickness and Health!"..... Brian is living up to his part, if that may be the case.

Just remember, when you are healed, by the grace of God, and with keeping the faith, and with the medical technology of today, I'm sure in the not too distant future, you will make a nice breakfast for Brian, and serve Him in Bed! ..... I could see that.
As much as you enjoy the travel craft near the levy's and the relaxation and piece of mind sitting on the porch in your pillow padded chair, you remember, look just a little further, and you Will See yourself with less pain, and you Will See yourself healing. And all the while, all the love of Brian shall support you, and strengthen you even more.
You are both made for each other, and Pray that you shall serve each other, and be with each other ( literally ), for a long long time.


Goodness, Jimmy, you made me cry.  What a kind, sweet, darling message!  I happen to think Tina is a pretty lucky lady, too!

And don't worry, as if this procedure helps me get around "normally" again, he's going to be spoiled rotten.  About six months before he retired, I would bring him coffee in bed in the morning, and when he smiled and woke up, I would say, "This is what retirement is going to be like, baby!"  And it was (when I was able to beat him getting up earlier) for about 2 years.  Then came the PH diagnosis last July/August but I quickly got strong enough to go up the stairs with no problem so morning coffee was on again.  And in better days (again, when  was able to beat him up as we're both early risers), I have served him breakfast in bed -- he always acted like it was the best thing in the world, too!  

We are lucky that we're still happily married (and just plain happy together, as we crack one another up every day), as I don't think a mediocre marriage could survive my being so immobile, in such pain (and often times I'm grouchy between moans!) and able to be of no help around the house!  We celebrated 36 years together last April and both of us feel lucky that we made it to retirement together!

Again, thank so much for your kind, encouraging message, Jimmy.  You're such a special person.



Last edited by Crybaby on Tue May 26, 2015 6:07 pm; edited 1 time in total

96 Re: A HUGE WELCOME on Tue May 26, 2015 6:00 pm

Crybaby

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bethk wrote:Awwww....both wonderful posts.

Ditto on what Jimmy said, Michelle.  You and Brian are both fortunate to have each other.  Stay strong and know we are all praying for you to have strength and courage to complete your treatment.  I'm sure Brian just wants to make things as easy as possible for you....that's life love, to be sure!

And, like you said, You are blessed.


Thanks, Beth! I can't tell you how much your prayers are appreciated, not to mention your kind words.

97 Re: A HUGE WELCOME on Tue May 26, 2015 6:06 pm

Crybaby

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cookingirl wrote:Michelle, ((hugs))) -------what a wonderful tribute to Brian...
Sounds like you guys are truly love, honor, and respect each other; in other words~true friends in marriage...((hugs))

Aww, Cyn, that's so sweet of you. I always tell people that Brian is the best decision I ever made, and it's true.

Loved your orange baby in your avatar -- too cute!

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